ECEF Newsletter September 30,2015

REPORT

  •  We have decided that we need to bring ECEF more into the public eye and we are taking the following steps to make this happen:
  • Our Executive Committee will be meeting with Google in October to see how we can make use of their services to bring ECEF into their world.
  • We will make a serious effort to post articles and comments to Facebook and Twitter. We now, through our web site links, are able to post every article that we capture from Google Alerts to be placed on our Facebook account. This gives us a presence in the social media.
  • Several of the patients and their families are involved in the marketing process through companies they work for, and we will look for their assistance to provide additional ideas to bring ECEF to the public’s attention
  • We also have established a National Ambassador Program and we will look to advertise this program as a way for people to help us spread the word about this dreaded disease.

We continue to work on our plan to prepare awareness packages including this video and send it to various Adult Communities that are located in New Jersey. The intent is that they will inform their residents about esophageal cancer by putting flyers up in the club houses for all to see. If they have a health forum evening or day, volunteer members of ECEF will try and be there to have a table with all of our awareness material. We are also looking into press releases and TV spots as an added awareness opportunity. This process is going slowly simply because we need volunteers to gather the information about the various senior communities in New Jersey.

Major Activity for the Third Quarter

 Events

 Annual Day at the Races

 Our 12th Annual Day at the Races was a successful event. Early in the week we were concerned about the weather and our thoughts briefly moved to what we would do if it rained as the forecast indicated. It would have been the first Day at the Races that was rained out and a lot of prayers gave us a great day for the event.

In all we had 125 people in attendance  and you can see some of the pictures that were taken at the event. http://fightec.org/events/day-races-september-13-2015/

As part of our Day, we awarded Memorial Sloan Kettering Cancer Center, through Dr. Manjit Bains, a check for $50,000.00 for the research projects that ECEF are sponsoring. If you would like to review the $500,000 we have given our research projects from ECEF’s inception please click on http://fightec.org/grants/

We have 3 months to raise another $50,000 if we plan to reach our 2015 Goal, of $150,000, for research. Your help will be appreciated.

Projects Completed

The following events reflect the activity during 2015 and we are pleased to see that they each raised funds for our research projects. Please click on http://fightec.org/ecef-events/ and you will see these events listed in the right hand column. Please click on any of them and you can read their stories and see the funds they have raised for ECEF research projects.

  • Annbeth Katz In memory of her husband Gerry Katz
  • Jean Warren In memory of those who have died of esophageal cancer in her community including her son Professor John Warren
  • Lorraine Castanio in memory of her husband Frank Castanio
  • Erin Silliman in memory of her Father Dr. George Harkins Jr. and Step Father-in-Law Gene Barnes both esophageal cancer victims
  • Linda Desiderio in memory of Peter Desiderio
  • Lynn Mohs in memory of her brother Brad Chik
  • Annual Day at the Races

Current Project

We have no fund raising projects schedule for the remainder of the year.

Corporate Activity

  • New Jersey Wireless Association (NJWA)

As reported in previous newsletters. NJWA gave ECEF a grant to bring awareness of esophageal cancer to New Jersey residents. We have used this grant to produce an awareness video and we have been receiving positive reaction to the video making its appearance on You Tube, Facebook and on our web site.  Please take a look at this video and please send it to those on your email listing. You can save lives. https://www.youtube.com/watch?v=1u_Pxu6qH7s

  • Novadaq

We continue to work with Novadaq in bringing their products to the attention of Thoracic Surgeons and Cancer Institutions. We will look into the possibility of participating in the Thoracic Surgeons Club Annual Meeting next year. Our hope here is to make surgeons aware of the patient to patient program and how it can help the patient navigate through esophageal cancer and more importantly through their recovery process.

  • Interface Diagnostics

Currently this company provides molecular diagnostic kits for Thyroid and Pancreatic Cancers. They are exploring the need to develop a Barretts Esophagus kit and ECEF has done a presentation to their executive staff, from a patient’s perspective of esophageal cancer and the symptoms that lead to this disease. We will be working with Interface Diagnostics going forward.

  • New Colony Partners

This is a healthcare marketing and media company that is using patients and those patient’s stories to build a base for various reasons. We recommend that you Google them and look at what their plan is and how they intend to go about it.

We have become a member of www.healtheo360.com and we suggest that you look into this site and become a member if possible. We have posted stories about my journey through this disease and my interview with them can be seen as a video on their web site. We hope to have this site play a role in future support group meetings.

Patient Programs

We have over 60 people who have signed up for our Conference Call Support Group meetings that are held on a monthly basis. We normally get around 15-20 people at any given meeting

Our hot line 732-385-7461 is active and we are receiving calls from patients, who in some cases know nothing about this disease. We have also been placed on a resource list of two major cancer centers to help patients navigate through this disease.

 EC ARTICLES

  On our web site www.fightec.org we have a category called EC Articles. We rely on Google to give us a copy of the original articles that mention Esophagus or Esophageal Cancer. We review the articles, and those that would be of interest to a patient and their family are posted to our web site under various categories within EC articles. These articles are also posted to our Facebook and Twitter pages.

Below are the articles we have selected for this quarters newsletter:

Bandera Man warns others not to ignore Acid Reflux Symptoms

When Sonny Haas was in his 20s, he never imagined his acid reflux would lead to cancer.

He was eventually diagnosed with Barrett’s Esophagus, and he took medication for years. The burning in his chest stopped, so he stopped taking it.

“Then back in March, I started having some pain when I swallowed and some chest pains,” Haas said.

The 75-year-old had an endoscopy, which showed the worst.

http://www.kens5.com/story/news/2015/09/30/bandera-man-warns-others-not-ignore-acid-reflux-symptoms/73126650/

More Evidence Daily Aspirin may Fight Colon Cancer and Other Gastro Cancers

Millions of Americans already take a low-dose daily aspirin to help shield their hearts. Now, a new study suggests the same inexpensive pill might extend survival for patients battling cancers of the gastrointestinal tract — including tumors of the colon and esophagus.

More Evidence Daily Aspirin May Fight Colon Cancer, Other Gastro Tumors

Boston Scientific launches the Captivator EMR device to treat diseases of the upper GI tract

MARLBOROUGH, Mass., Sept. 29, 2015 /PRNewswire/ — Boston Scientific Corporation (NYSE: BSX) announced today the launch of the Captivator™ EMR Device for Endoscopic Mucosal Resection (EMR), a minimally invasive alternative to an esophagectomy, a surgical procedure that  removes part of the esophagus in upper gastrointestinal (GI) tract cases.

http://www.fiercemedicaldevices.com/press-releases/boston-scientific-launches-captivator-emr-device-treat-diseases-upper-gi-tr

Conclusion

If you have any thoughts about what you would like to see more about in these newsletters please let us know. We are always interested in assisting the patients and caregivers as they journey through this disease. You can email us at info@fightec.org .

Respectfully submitted

Bart Frazzitta

President

 

 

2 Comments



2 Responses to ECEF Newsletter September 30,2015

  1. Dear Bart and Jenny, I want to thank you both from the bottom of my heart for all the helpful years you have been there for Barry and me.
    We saw Br. Bains for Barry`s 8 year check up. He has given him a clear bill of health and we will now be working with our own doctors to decide when or if Barry needed more tests done. It is a miracle I know. I will always be grateful for the many years of support you have given us. I am mailing you a small check of our thanks. I will continue to pray for a cure so everyone with this type of cancer will have their miracle you . Much love,Amy & Barry Grodin

    • bart says:

      Hi Amy

      We have certainly missed your involvement in our support group meetings. Thank you for all you have done in helping us pay for the services we provide. It is great to hear Barry is doing well and we hope he continues to be a fighter against this disease. Awareness is what we can give back for our being able to get through this disease.

      All the best.

      Take Care

      Bart

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