President’s Message

A Survivor’s Story:

Salt of the Earth:

 

 

 

 

In 2017, we will celebrate the Esophageal Cancer Education Foundation (ECEF) 14th anniversary and my 17th year from my esophageal cancer surgery. We thank God for giving us this time, and allowing us to reach out and touch patients and caregivers as they journey through this dreaded disease.

We have decided to take ECEF to the next level in 2017. We have expanded our Medical Advisory Committee to bring more Doctors and Medical Professionals into the five working subcommittees we have developed.

Those subcommittees consist of an International, Public Relations, Research Projects, Patient and Caregiver Services and Social Network subcommittees.You can check this out if you click on http://fightec.org/ecef-structure/medical-advisory-committee/

SUPPORT GROUPS

In addition, because our Conference call Support Group participation has grown, we have gone to a third support group each month. We now have two support groups for patients who have gone through an esophagectomy and we have a conference call support group for patients who have experienced a recurrence or who are in a stage IV condition. Our goal for 2017 is to have a medical professional attend each of these meetings. Any information that is discussed at these meetings must be cleared with the patients doctors before they take any action using what they have heard. All support groups include caregivers.

YOU TUBE CHANNEL

IN 2017 we continue to develop our You Tube Channel and have placed 16 videos on it: https://www.youtube.com/channel/UCDkh7_H9BOnNASdmG4pdF0g

Our plan for 2017 is to add additional videos on this channel. We will approach various doctors to give us their responses to the most frequently asked questions dealing with issues that are a result of the esophagectomy surgery. In addition, we will be asking patients and caregivers to give us a brief account of their stories so we can post those videos on our You Tube Channel. Google has indicated if we are able to get 1,000 subscribers to this You Tube Channel they will produce all of our videos at no cost to ECEF. If you can please subscribe to this channel and help us reach this 1,000 subscription goal.

HOT LINE

Our phone Hot Line to address questions about esophageal cancer is 732-385-7461.  We are working with the General Thoracic Surgical Club members in providing ECEF with their contact information so any call we receive from within the U.S. will have a potential referral of a surgeon in that callers area. We have made 18 patient referral in the 9 months this service has been active.

BOOK

ECEF has authored a book called Esophagectomy Post Surgical Guide Q&A that addresses the most frequently asked questions and answers about the post surgical experience. This book can be obtained from your local book store or by going to our Home Page on this web site. Various Hospitals have purchased quantities of this book to give to patient as they leave the hospital post surgery.

Ginny and I hope, with God’s help, we can make a difference in a patient’s life by the various items we have spoken about in this message.

Respectfully Submitted

Bart Frazzitta

President