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Past Events

March 19, 2012

John T. Warren Walk-A-Thon

27 Days By Gina Warren

27 days.  Less than one month.  That is how long John T. Warren’s battle with cancer lasted.  In 27 days time esophageal cancer stole from this world a marvelous and loyal husband, father, son, brother, uncle, cousin, and friend.  It stole a brilliant scholar, teacher, author, mentor, and human rights advocate.  It stole from me a form of love and laughter that I will never again know, and left me in return wondering how any of this came to pass.  How is it possible that a healthy, 36 year old man can be diagnosed with Stage 4 cancer when the only symptom he ever experienced was acid reflux?  And why didn’t I force him to have an endoscopy seven years ago when our family physician first recommended it?  Because we mistakenly thought that a 36 year old man who ran six miles per day, six days a week was healthy, and that his health and the miracles of modern medicine could see him through cancer or any other physical ailment that came his way.  But John never got the chance to have any treatment.  He died two days prior to his scheduled chemotherapy.  He left me, our 3 year old and five year old sons, and the rest of the world wondering what had happened and wishing we could only have had more time with him.

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March 8, 2012

Bowling Fundraiser in NYC

Melissa’s Story

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Back in 2007, the first diagnosis came.  My father, Paul Cohen, who had been healthy but suffering from heartburn, was told that he had Esophageal Cancer.  Overwhelming!  There was little information out there but we did the research that we could and started treatments.  Then in 2008, my father-in-law, Ira Cohen, was also diagnosed with Esophageal Cancer.  Devastating!  The shock was that neither one had any idea that they were sick.   Esophageal Cancer is a silent killer and they were both victims.  There is very little information available and by the time it is diagnosed, it is usually too late.  After two very long and brave battles, we lost my father in July 2009 and my father-in-law in December 2010.

My dad was my hero.  He attacked this disease with great courage and determination from the onset.  He fought hard and was never deterred by the setbacks until the very end and even then I do not believe he was ready to give up.  My father’s only hope during this time was that he would live long enough to see my son turn 4.  He didn’t make it.  Ryan said “Pa” for the first time at my father’s side of the bed the day of the funeral.

As for Ira, he also fought with a passion and got great joy out of the time he got to spend with my son.  To this day, Ryan will still talk about him and try to understand why he is not coming back.

March 7, 2012

Bill Reddig Honored with Fundraising Event in Denver

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Our father, Bill Reddig, is being honored with a special Esophageal Cancer Awareness and Fundraising Event in Denver, Colorado this April 14th, 2012!

The event is being held in conjunction with April–National Esophageal Cancer Awareness Month. The location of the event will be at Stoney’s Bar and Grill on 1111 Lincoln Street, Denver, CO, starting at 7:30pm. In keeping with our dad’s love of golf, the celebration will honor him and have a golfing theme. Tickets are $20.00 per person, with a portion of all donations going to esophageal cancer medical research projects that focus on early detection of esophageal cancer and are sponsored by the Esophageal Cancer Education Foundation. Dad is cancer free now, and anxious to spread the word about early detection of EC to friends, neighbors, and the general public.

January 19, 2012

Bowling for EC Awareness Raised $7,090.

March 11, 2010 my dad, Frank Castanio Jr., went to a gastrologist. He was having trouble swallowing and had been attributing it to acid reflux. He had been taking Tums and Rolaids and they weren’t working.  He thought this was all due to the stress of working two jobs in order to provide  for his family. The gastrologist performed an endoscopy.  The endoscopy showed a large tumor in his esophagus and the doctor performed a biopsy and sent him for a cat scan.  He received the results, cancerous, on March 17th.  On March 23, 2010 at Sloan Kettering Memorial Hospital in NYC, my dad was diagnosed with Stage III esophageal cancer. The tumor at the time was believed to be confined to the esophagus. The doctors then ordered a pet scan and the results showed something up near or in the appendix. They removed the tumor which was attached to the outside of the appendix and the appendix laparoscopically and another biopsy ensued.  We were informed by the surgeon that they “got it all”, they couldn’t find any trail to link it to the esophagus and there were no signs of it in the stomach swashing. However, the biopsy said something else. Stage IV Esophageal Cancer. Our whole word changed forever. He began chemotherapy immediately. The tumor wasn’t shrinking, the swallowing was worse; he was loosing so much weight. By August, Radiation was ordered.  The tumor shrunk in the esophagus but had now metastasized to his bones. In May 2011, after six different mixtures and rounds of chemotherapy, three rounds of different radiation and  monthly bone strengthening medicine, we were told there was nothing more that they could do and we should seek clinical trials. Mid May he was hospitalized for a week. The doctors tried to help him with his pain and regulate his medication so he could come home.

 

December 15, 2011

Sarah Eagley Completes in New Year's Eve Race

 

Amount Raised to Date: $70.00

 

The Foundation received its 501(c) (3) IRS designation as a charitable organization and therefore making the donations that it receives fully tax deductible to the donor.

 

I have had the opportunity to know two special people who have been diagnosed with esophageal cancer. It bothers me that we have lost one of them and the other is fighting for his survival.

My husband and I have come to the position that this disease is not fair and we intend to fight it by doing this race on New Year’s Eve in memory of Elmer Twilley and in honor of Randy Flagg. We ask for your support and make a donation to the Esophageal Cancer Education Foundation (ECEF) www.fightec.org to support the research projects they have identified that will develop a blood test that will identify esophageal cancer at an early stage. 

August 13, 2011

The MacPherson Family Awareness Project Completed

MacPherson’s Raise $5,176.00

 

In July of 2008, Robbie was diagnosed with esophageal cancer. Unlike many others that face this disease Robbie had no symptoms. He was extremely lucky to have a doctor, Dr. Howard Guss of Ocean Township, New Jersey, who recommended an endoscopy due to his age and other history. As a result of this test and regular follow up recommended by Dr. Guss, the disease was caught very early and he was successfully treated with surgery at Memorial Sloan Kettering Cancer Center. Robbie has been cancer free since then. Unfortunately, most do not find out they have this disease until they have symptoms, at which time the cancer may be more difficult to treat.

Through Robbie’s surgeon at Sloan, Dr. Manjit Bains, Janice and Robbie learned of the Esophageal Cancer Education Foundation (ECEF), and the Foundations’s mission to make people aware of this disease, its symptoms and to help people like Janice and Robbie who must face this disease.

August 10, 2011

Gary Orr takes on Lake Placid, NY Ironman

Gary Orr is a two year survivor of Stage lV Esophageal  Cancer and wants to help bring awareness of this disease and hopefully raise money to support a research project that will lead to an early detection of this disease.

Gary’s story begins when as a youngster he became interested in swimming and found himself swimming 11 months out of the year. He continued with swimming and ultimately getting a scholarship to a Division 1 College. Realizing the politics that go along with a Division one school he decided to return home and go to Ramapo College where he was a leader on the swim team.  He set many records some of which still stand today and won the 1650 Metropolitan Conference Championship by two-tenths of a second.

August 10, 2011

Baton Rouge Beach Marathon Completed

Jeff Maggio completed the Baton Roughe marathon to raise money and awareness for esophageal cancer in honor of his Dad, […]

February 28, 2011

Emily completes the Chicago Marathon

On Sunday, October 9, 2011, Emily Sobut participated in the Chicago Marathon in memory of her Dad who died from esophageal cancer.  Emily raised over $5,925 all of which was donated to the Esophageal Cancer Education Foundation to raise awareness about this terrible disease.

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